Meeting Dr. Duffy

Today we had our first meeting with Dr. Duffy of the Epilepsy department. He is going to be our primary contact from now on for Ella’s care. All contact with Dr. Duffy is extremely positive. He is of that rare breed of doctors that takes the time to explain things, treats you with great respect and gives you a genuine feeling of caring, and being extremely competent. The message was very clear. The hemispherectomy is inevitable. With her condition there really aren’t any other choices. This is both frightening and encouraging. The prognosis for kids following the operation is extremely optimistic. However it is a risky, delicate operation. The good part is that it feels like there is a plan now. Also according to Dr. Duffy, the chances of her ability to lead a ‘normal’ life after the operation are pretty good. Best case scenario is that the operation will be carried out at a planned date with adequate time for preparation and contemplation. Worst case scenario the operation will be carried out in emergency mode if Ella starts having intractable seizures.

This entry was posted on Friday, September 28th, 2001 at 11:50 am and is filed under Ella's Log. You can follow any responses to this entry through the RSS 2.0 feed. Responses are currently closed, but you can trackback from your own site.

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