After just seeing too many of those left leg twitches and jerks, some of which seem to involve her whole left side, I broke down and started looking for Dr. Duffy last week. Although I paged him a number of times, he didn’t return my calls and neither did his secretary. Frustrating!!! Finally, I got through to the nurse, Marian, who spoke with a Dr. Tiele. She prescribed something called Topamax right away. This added seizure medication comes in little sprinkles inside a capsule and I need to give her half at night and a quarter of a capsule in the morning in addition to the usual phenobarb. It’s tricky. I’ve been adding it so her vitamin syrup, which she likes on a spoon.
The first two days were good. We didn’t see the jerks until late the following afternoon. But now, these twitches seem to be back to how they were before. They don’t seem to bother Ella much but for me it is hard to watch. She can be smiling happily and then a jerk of the leg, eye, arm or whatever, will instantly surprise her. Other than that Ella has been in a great, happy mood lately. She’s so cute now.