Pessimism

I don’t feel as positive as Etan’s last entry. Actually, I find Ella’s situation quite depressing. Day after day, as I can see, she seems to be the same. Often she looks very drowsy most of the day. She doesn’t hold anything consciously and she doesn’t reach for any toys. Even when she sits in her trampoline chair (bouncy chair) her head usually falls to one side. I saw the ultrasoundist yesterday, Dr. Bruce Cohen. We reviewed the 16 weeks, Level II ultrasound films and I showed him the ultrasound films taken after Ella’s birth and the MRI. I don’t understand why if this condition starts developing in the first trimester, how such a gross deformity of the brain can’t be seen in the 16 week ultrasound as if everything noticeable happened from week 16 through 38. His answer was ultimately: her condition is not looked for because it is too rare. Well thanks. I guess Ella’s head control is getting better slowly. She still seems very far from being able to prop herself up in a prone position (on stomach). I stopped feeding her fruits because she was having some constipation and I also read that it is best to start solids at six months. There is no reason to rush it and they could cause her problems.

This entry was posted on Saturday, November 24th, 2001 at 9:29 pm and is filed under Ella's Log. You can follow any responses to this entry through the RSS 2.0 feed. Responses are currently closed, but you can trackback from your own site.

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