Ella seems to be making some progress in the last few days. I guess the main difference is that she seems more awake. She moves both hands and arms quite a bit now and her sides seem to move symetrically when she is laying on her back. She holds toys when we put them in her hand — especially into the right hand. We are thrilled to see her batting her toys in her bouncy chair or under her little “jungle” gym. Things are working out well with our new nanny, Yvette. She just loves Ella and she cooks too! We went to see the geneticist this morning, Dr. Stoler at Mass General Hosp. Her office seemed much more organized and thorough than what we’re used to at Children’s. Dr. Stoler was very thorough. It is important to see the geneticist and the genetics counselor; they try to find out what “syndrome” Ella has (if it has a name and is known). That gives them an indication of how to treat her over time and what we need to look out for. I have a follow up appointment with her in two weeks after she has researched her findings. On the one hand I’m afraid to find out…but on the other hand, what could be worse than what we already know?