We were hoping to get to the surgery date without any more seizures. That was not to be. Saturday night, Ella started seizing again. After a long reprieve, they were back. The seizures this time were very unpleasant. They were less subtle than the previous ones, and lasted longer. The left part of Ella’s body rhythmically twitching and her face slowly turning gray, eyes turned straight up. The effect on us is nearly as bad as the effect on her.
The seizures repeated themselves during the night and the next morning. For the first time ever we used the emergency Diastat gel. This is a rectal syringe that is supposed to stop seizures in their tracks. To be used only with prolonged seizures. Sunday morning we contacted the pediatrician’s office and went in to see him. It seems like Ella has an ear infection and that could explain the resulting fever and seizures. (We hope) She is now on antibiotics and Tylenol, and has not had any more of those big seizures. We have noticed a return of the periodic left leg ticks that started out the previous seizure attack. Lets hope that these will also fade away.
All we wanted was to get to surgery without another bout of seizures, was that too much to ask for, We should have learned by now… Ella is back to being her smiley little self and was totally into listening to music last night. One week to go.