In general it feels like Ella is moving forward, no leaps and bounds but a steady movement forward. The most rewarding thing is that in the past few days Ella has regained her joy of life that was almost her trademark before surgery. She again seems to enjoy and be amused by her surroundings. This is great and makes being with her so much fun. Ella’s dexterity is improving consistently. She is becoming more accurate in getting things in her mouth, grabbing for toys, and following with her gaze. She is using her left hand a bit, though much less than the right.
The next test awaiting her are: next week an EEG test. This is intended to verify that there is no seizure activity going on in her brain. If (and we won’t settle for any other option) that is the case. A plan will be made to reduce the remaining medication dose slowly to nothing. The following test is a CAT scan to see what the status is with brain fluid pressure in her brain. Our hope is that there will be no problem and no threat of hydrocephalus. The further we get from surgery without that pressure developing the better her chances of escaping that completely.