Even when you are two years old and you are Ella, there are CT scans and appointments with the neurosurgeon. The shunt “tap” was performed a week ago today and the pressure was determined to be 110. The shunt was set at 80 so that means that while Dr. Black (who was called in the OR with the tap results) doesn’t think that the shunt is malfunctioning, it is clearly not accurately maintaining the pressure of the setting. 110 is a high setting for a toddler, so on Dr. Black’s orders, the nurse turned the setting down again and Ella needs to have another CT scan at the end of July. I’m glad we got all this done now but I’m not too thrilled with the possibility that the shunt is not working completely right. Hopefully we will see some reduction of the ventricle size in a month following the (hopefully) reduced pressure. Ella continues to make slow progress but I feel like I got too excited about her standing progress. Over the weekend we were in NYC. When we were in Central Park with Ella’s AFOs I did some standing exercises with her. She would only agree to stand if we played Gidi Gov songs through Etan’s palm pilot. Without music, she refused to make any effort and just complained and collapsed. I’m dissappointed that Ella doesn’t seem to want to stand. It is alot of work for her and I’m thinking that it will take months for her to stand independently let alone walk. Progress is continuous but very, very slow from day to day.